Husband and wife embracing

Julie, living with FCS, and Gary, husband and caregiver

Patient Centricity & Advocacy

Our Commitment to Patient Centricity & Advocacy

At Arrowhead, everything we do is aimed at making someone’s life better. That purpose drives our science, our decisions, and our commitment to the disease communities we serve. Our mission is to improve lives through innovative science—with patients at the center of everything we do.

Scott, living with FCS, and Melanie, wife & caregiver

Scott, living with FCS, and Melanie, wife & caregiver

Patient-Centered Innovation We believe patient-centered innovation begins with listening and fostering trusted, authentic partnerships. By engaging directly with the patient and caregiver communities we serve, we gain insights that shape our potential medicines to address their most pressing needs.

Driving Change Together We proudly work alongside patients, caregivers, and advocacy organizations to advance shared goals, accelerate education, raise awareness, and amplify voices to drive change together.

Supporting Your Care Journey We’re dedicated to supporting patients and their families throughout their journey with resources and comprehensive programs and services—from helping navigate the diagnostic process to providing ongoing patient support services, including resources that may assist with accessing treatment.

Julie, living with FCS, and Gary, husband & caregiver

Julie, living with FCS, and Gary, husband & caregiver

Every Breakthrough Begins With Understanding

Our Familial Chylomicronemia Syndrome (FCS) Lived Experience Council brings together a diverse group of individuals living with FCS to share their insights, perspectives, and feedback on key topics vital to the FCS community.

Fin, father & caregiver, and Devon, living with FCS

Fin, father & caregiver, and Devon, living with FCS

Spotlight on FCS Paper

Sharing the lived experiences of 14 individuals from the FCS community, transforming their personal journeys into a powerful catalyst for systemic change in FCS awareness, diagnosis, and care.

Paper highlights include:

  • Real-life experiences of those living with FCS
  • Ways to support newly diagnosed individuals and families
  • Challenges in diagnosis and ongoing care
  • Critical unmet needs in the FCS journey
  • Suggested actions to help drive systemic change
Read the Paper

Advocating Together for Meaningful Change

Patient centricity goes beyond developing medicines—it's woven into who we are. Arrowhead employees actively engage with the communities we serve, inspiring us and shaping a shared purpose that fuels innovation every day.

Alexandra Roeser and Janna Jagoe

Our team members, Alexandra Roeser and Janna Jagoe, supporting inherited lipid conditions communities at the FH Europe Foundation's Annual Network Meeting in Vienna, Austria, 2024

Arrowhead team raising awareness

Our team raising awareness and supporting Familial Chylomicronemia Day with a company-wide town hall learning about the real impact of living with FCS from special guests, Julie and Gary.

Arrowhead employees

Arrowhead employees across the country came together to walk and raise awareness for Familial Chylomicronemia Syndrome (FCS) at the annual FCS Foundation's Virtual 5K.

Contact us at patientadvocacy@arrowheadpharma.com to learn more about our patient advocacy or to share your patient and caregiver story.

Organizations We Support

FCS Foundation logo

FCS Foundation

Foundation of the National Lipid Association logo

Foundation of the National Lipid Association

The National Pancreas Foundation logo

The National Pancreas Foundation

Action FCS Logo

Action FCS

National Triglyceride Alliance logo

National Triglyceride Alliance

Mission Cure logo

Mission Cure

FH Europe Foundation logo

FH Europe Foundation

Family Heart Foundation Logo

Family Heart Foundation

Husband and son playing music together

Patient Stories

Real voices sharing personal journeys with FCS—from diagnosis challenges to treatment triumphs.

Hear Their Stories
Doctor meeting with a patient

Clinical Trials

Clinical trials are an essential part of our research. Discover the therapies we’re currently developing.

See Our Research
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Triglyceride Resources

Disease education and management for patients living with high triglycerides.

Visit Site

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