Patient Centricity & Advocacy

Julie, living with FCS, and Gary, husband and caregiver

Our Commitment to Patient Centricity & Advocacy

At Arrowhead, everything we do is aimed at making someone’s life better. That purpose drives our science, our decisions, and our commitment to the disease communities we serve. Our mission is to improve lives through innovative science—with patients at  the center of everything we do.

Scott, living with FCS, and Melanie, wife & caregiver

Patient-Centered Innovation
We believe patient-centered innovation begins with listening and fostering trusted, authentic partnerships. By engaging directly with the patient and caregiver communities we serve, we gain insights that shape our potential medicines to address their most pressing needs.

Driving Change Together
We proudly work alongside patients, caregivers, and advocacy organizations to advance shared goals, accelerate education, raise awareness, and amplify voices to drive change together.

Supporting Your Care Journey
We’re dedicated to supporting patients and their families throughout their journey with resources and comprehensive programs and services—from helping navigate the diagnostic process to providing ongoing patient support services, including resources that may assist with accessing treatment.

Julie, living with FCS, and Gary, husband & caregiver

Every Breakthrough Begins With Understanding

Our Familial Chylomicronemia Syndrome (FCS) Lived Experience Council brings together a diverse group of individuals living with FCS to share their insights, perspectives, and feedback on key topics vital to the FCS community.

Fin, father & caregiver, and Devon, living with FCS

Spotlight on FCS Paper

Sharing the lived experiences of 14 individuals from the  FCS community, transforming their personal journeys into a powerful catalyst for systemic change in FCS awareness, diagnosis, and care.

Paper highlights include:

Real-life experiences of those living with FCS
Ways to support newly diagnosed individuals and families
Challenges in diagnosis and ongoing care
Critical unmet needs in the FCS journey
Suggested actions to help drive systemic change

Read the Paper

Advocating Together for Meaningful Change

Patient centricity goes beyond developing medicines—it’s woven into who we are. Arrowhead employees actively engage with the communities we serve, inspiring us and shaping a shared purpose that fuels innovation every day.

Our team members, Alexandra Roeser and Janna Jagoe, supporting inherited lipid conditions communities at the FH Europe Foundation’s Annual Network Meeting in Vienna, Austria, 2024

Our team raising awareness and supporting Familial Chylomicronemia Day with a company-wide town hall learning about the real impact of living with FCS from special guests, Julie and Gary.

Arrowhead employees across the country came together to walk and raise awareness for Familial Chylomicronemia Syndrome (FCS) at the annual FCS Foundation’s Virtual 5K.

Contact us at patientadvocacy@arrowheadpharma.com to learn more  about our patient advocacy or to share your patient and caregiver story.